Tuesday, February 9, 2021

National Disability Network India meets

 NDN and NCRPD Meeting


Date: 27.01.2021

Time: 2.00- 4.45 PM (5:15 PM)

Venue: Zoom

Participants:

1. Mr. Arman Ali

2. Mr. Akhil Paul

3. Mr. Anuj Jain

4. Mr. Ankit Rajiv Jindal

5. Mr. Arun Kumar Singh

6. Mr. Avelino de Sa

7. Mr. Akshay Jain

8. Ms. Anju Talukdar

9. Mr. Aniket Panda ( Sign-language Interpreter)

10. Ms. Anoushka Augustine

11. Ms. Asifa Parveen

12. Mr. Babu S Khan

13. Mr. Balbir Singh

14. Ms. Diethono Nakhro

15. Ms. Garima Shukla (Sign-language Interpreter)

16. Maj. General Ian Cardozo (Retd.)

17. Mr. Javed Ahmad Tak

18. Mr. Javed Hasan

19. Dr. J.S. Arora

20. Ms. Kanchan Panmani

21. Ms. Ketaki Bardalai

22. Dr. Ketna L Mehta

23. Ms. Kumari Vaishnavi

24. Ms. Mridu Goel

25. Mr. M. Srinivasulu

26. Mr. Narender Paul

27. Ms. Neha Arora

28. Ms. Niharika Das

29. Mr. Omprakash Sharma

30. Mr. Pradeep Raj

31. Ms. Priya Bhattacharya

32. Ms. Radhika Alkazi

33. Dr. Shanti Auluck

34. Dr. Sudesh Mukhopadhyay

35. Ms. Suvarna Raj

36. Ms.Tulika Das


Discussion:

Opening Remarks by Arman Ali

Arman Ali welcomed the participants and set the context of the meeting. Building on the

discussion in the previous NDN and NCRPD meeting held in June, 2020, he emphasized the

need to set a way forward in the form of building an advocacy agenda. He also gave an update on

the status quo of various activities undertaken by NCPEDP during the last few months which

include the proposed RCI Amendments, Draft Bill on University of Disability Studies and

Rehabilitation Sciences, 2021 and Suggestions for Budget 2021-22.


Overview of RCI and progress till present proposed 2020 RCI Draft by Dr. Sudesh

Mukhopadhyay

The proposed amendments to the RCI Act raises questions over the qualifications of RCI

Chairperson by introducing new criteria and tilting the post more towards the bureaucratic side.

The proposal also includes various new courses being added without actually delving into the

challenges. The lack of manpower and the challenges associated with it does not find mention in

the amendments.

The most striking amendment is the self-sustainment of RCI which has a direct impact on the

organizations and individuals working and taking courses under the RCI. With NEP 2020,

certificate and diploma courses come under the purview of higher education. But the proposed

amendments are not in alignment with the NEP 2020. It has also failed to see special schools as a

medium required for children with disabilities.

Courses have been divided into personal and professional and tends to overlap with NCT. The

reflection of disability as a state subject and PRI subject is not clear. Therefore, there is a need to

look closely at the aspects of Choice based credit and certifications, interlinkages between

different disability organizations and financial coverage.

Suggestion: White paper needs to be developed.

Gen. Ian Cardozo: There is a need to develop a Vision for the disability sector in terms of a five

year plan. Strategies should be structured keeping in mind views from the international, national

and regionals spectrums. Emphasis needs to be laid on understanding if the already existing

infrastructure of the RCI, National Trust, Commissioner for Persons with Disabilities is

sufficient.

The approach should be to work in tandem with the government which would in turn be

beneficial to the disability sector.

Mr. Akhil Paul: Responding to a point raised by Dr. Mukhopadhyay, Mr. Paul was of the

opinion that merging of courses is not lucrative. As such, a long term approach in the form of

social audit needs to be undertaken.

Mr. Narender Paul: Allocation of budget is either not utilised or underutilised, if we

collectively and cohesively work we can bring up the gaps in that to the ministry .


Mr. Anuj Jain: The importance of deaf teachers and hearing teachers should be recognised in

schools and higher education institutes. Under B.Ed. , Me. Ed. there is a need to rename hearing

impaired as deaf.

Ms. Shanti Auluck: We should work towards setting up a secretariat which will involve all the

organizations from the sector in order to provide a larger vision to the sector.

Update on State Activities by NDN Partners

Mr. Narendra Paul ( Himachal Pradesh): CORD has been working closely with the state on

short term and long term status of children with disabilities. Education of children with

disabilities has been affected due to COVID-19. Engagement of persons with disabilities and

government on livelihood strengthening at the grassroot level such as MGNREGA is happening.

A week in December was dedicated to disaster reduction and sensitization on disaster

management with the state.

Mr. Arun Kumar Singh (Jharkhand): The organization has been working in the field of

advocacy since 14 years but much of the work gets affected due to paucity of funds. And

COVID-19 had further deteriorated the situation. Pension has been delayed, disability certificate

camps have stopped. Antyodaya Cards have been converted to general/green cards where ration

entitlement is less than the Antyodaya. Education of children with disabilities has also suffered a

lot. Further, delayed responsiveness from the state authorities led to the death of two persons

with thalassemia.

However, some positive steps were also taken during COVID-19 like a two day workshop on

RPwD Act, 2016 as well support in the form of rations in rural areas was done in collaboration

with NCPEDP. A PIL has also been filed in the Jharkhand High Court for providing aid and

blood to a person suffering from Thalassemia. Steps are being taken for inclusion of persons with

disabilities in Panchayti Raj committees. Lastly, there is a need to create awareness around the

RPwD Act, 2016 as well as the 21 types of disabilities.

Ms. Tulika Das (West Bengal): Sanchar has been advocating with the Department of Education

for reopening of schools including special schools and to develop an inclusive SOP. Demands

are being made to ensure that no children with disabilities dropout from schools as that teachers

are considered a priority in vaccination. Lastly, with elections coming up in the state measures

are being taken to ensure that election manifestos include issues of persons with disabilities and

that the entire election process is made inclusive.

Ms. Vaishnavi Kumari (Bihar): COVID-19 has affected the education of children with

disabilities. Violence on women with disabilities and health issues have increased manifold and

the online assistance provided online has proved to be ineffective. Filing of PIL is another

challenge as the process is slow and leads to delayed justice for the victim.

Little relief was provided in the form of ration through NCPEDP.

Ms. Dietheno Nakhro (Nagaland): A lot of positive developments have been observed with

regard to persons with disabilities in the state of Nagaland. 4% reservation in jobs, special

prosecutors in courts have been notified as per the RPwD Act, 2016. Jobs have been identified


and published for persons with disabilities. As per Section 16 and 31 of the RPwD Act, 2016

inclusive education has been notified. Opening of a para sports committee has been initiated in

collaboration with the Nagaland Olympic Association. Monitoring of employment opportunities

for Pwd is undertaken in the state.

However, there are few shortcomings in terms of implementation. There is a dearth of special

education teachers. Identified posts were incomplete with regards to intellectual and multiple

disabilities.

Further, COVID-19 has brought to the forefront the need to create an inclusive disaster risk,

reduction and management. Vaccination has also been taken up with the health department to

emphasise on the need to give priority to persons with disabilities.

Ms. Ketaki Bardalai (Assam): During COVID-19, persons with disabilities were provided

individualized telephonic rehabilitation. The Awareness Generation Program conducted by the

Government of Assam was resumed at the State Level. Access audits have been conducted and

the construction of footbridges are being looked into to ensure accessibility standards are met.

Collaboration with the office of the Commissioner for Disability to increase the availability and

accessibility of information in braille and sign language interpretations. IEC campaigns are being

conducted to create awareness around making public spaces accessible by using radio jingles.

Persons with disabilities are still unable to access the reservations in housing related schemes,

aadhar cards are being denied on the ground of disability. Discrepancies in allocation of pension

to persons with disabilities has also been observed.

With COVID-19 bringing to the forefront the gaps in the disaster management authority,

awareness programs are being conducted.

Mr. Javed Ahmed Tak (Jammu & Kashmir): Intense climatic conditions for the past few

months have hampered the lives of persons with disabilities to access resources in the state. The

RPwD Act, 2016 has not been implemented and neither has the state rules been formulated. As a

result of this, the provisions for persons with disabilities as per the RPwD Act, 2016 is not there.

Implementation of NEP 2020 has been a major problem. Education of children with disabilities

have also been impacted due to COVID-19.

Ms. Mridu Goel (Uttar Pradesh): Helplines have aided in resolving problems of persons with

disabilities and it has also helped in creating medical and educational awareness. Access audits

have been conducted and a lot of the infrastructure audited were not accessible. Efforts need to

be taken to ensure new projects like RRTC under which construction of roads and depots are

sanctioned will be accessible for persons with disabilities.

Dr Ketna Mehta ( Maharashtra): The focus has been majorly on spinal cord injuries where the

network of hospitals is missing. It's important to run an awareness drive on spinal cord injuries.

Rehabilitation of spinal cord injury is an important area which needs to be developed. There is a

lack of registry which would serve as the database for the number of persons who have met with

accidents and have faced severe head and spinal cord injuries. A separate advocacy campaign

should be undertaken to make Spinal cord injury a separate disability.


Ms. Kanchan Pamnani (Maharashtra): The Bombay High Court has issued an order in favour

of persons with disabilities whereby it ruled that BMC has to provide salary to the disabled BMC

workers which was otherwise affected due to the lockdown. All grievance redressal through the

Disability Commissioner’s office has been made online. Further, the police officials played a big

role in assisting persons with disabilities during Covid 19.

National Education Policy (NEP), 2020 by Ms. Radhika Alakzi

The NEP, 2020 speaks in detail on children with disabilities and aims to change the core of the

education system by providing for new institutions, school complexes etc. While the Policy

speaks in detail about children with disabilities, it has failed to acknowledge the mention of

special schools. To this effect, a letter has been sent to the Union Education Minister apprising

him of the gaps in the NEP, 2020.

Mr. Amarjit Singh Anand (Punjab): The state disability rules have been notified recently.

Continuous follow-ups are being made with MP’s of various districts where there is a shortage of

assistive devices. A camp for 300 orphan inmates with disabilities was organized recently.

Another camp is in the process to enroll the inmates for disability certificates. Delay in pension

has been a pertinent issue in the issue with a backlog amounting to 7.5 crores.

Mr. Babu ( Karnataka): 4 RPD and 1 taskforce was selected for district level RPwD Act, 2016

implementation. Special provision was given to the Kalburgi division. Under 5% resource

allocation, 159 persons with disabilities got access to assistive devices, 95 persons with

disabilities got access to modified two wheelers and 257 ration kits were distributed from the

district administration. 810 persons with disabilities received pensions in Kalburgi. 1793 persons

with disabilities got registered under MNREGA and the Kalburgi division local body ensured Rs.

1.30 Cr for persons with disabilities in the 2021-22 Budget.

Further, six grievance redressal meetings were planned out of which 4 were held. More than Rs.

3500 crores were allocated by the state govt for pension. Two capacity building programs have

been undertaken during this year and 600 government school teachers have been oriented with

RPwD Act, 2016. 237 persons with disabilities from across the state were provided with the

information on udid, pension etc.

Two domestic violence cases were reported and the matter is being looked at. A meeting was

held with the Child Development Minister and submitted a memorandum.

Mr. Md. Yunus Khan (Manipur): Skill development center in the state was approached to get

an update on fund allocation and distribution. However, due to COVID-19, persons with

disabilities have been affected due to lack of coordination between various departments

concerning disability.

Concluding Remarks by Mr. Arman Ali

It was observed that there is a need for :

● Constant intervention at the state level vis-a-vis the implementation of the RPwD Act,

2016


● State level update of NEP 2020 vis-a-vis children with disabilities by intervening in the

NEP Tasks force formed in the states. Highlighting the gaps in the NEP 2020, a letter has

been sent to the State Education Ministers, Chief Secretaries and Chief Ministers which

requires continuous follow up from the state level partners

● Monitoring the State Budget and ensuring that it is inclusive of persons with disabilities

● Ensuring accessible elections at the state level

● Develop a strategy to ensure the exercise of Census 2021 is conducted in an accessible

and inclusive manner

● Strengthening NDN/NCRPD network by identifying new members

Overall there is a need to develop a five year roadmap for the disability sector with a cross-

disability approach.

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